You are currently browsing the tag archive for the ‘special needs parenting’ tag.
Yesterday evening, I received the paperwork and instructions for Ro’s urological tests. This as the worst symptoms are rearing their heads again, and it makes it more real and necessary. As bad as I hate to admit it, I need a doctor’s help with this one. After much thought and prayer, I’m finding myself more at peace with the necessity part of all this. What I’m still not comfortable with is the anesthesia and her being on Bactrim everyday until the procedures. The antibiotics will reverse anything I’ve done to heal her gut after having Rocephin in the hospital.
She is first having a renal ultrasound next Tuesday. Then, she will have a cystoscopy, a retrograde x-ray, and a cystogram the next week. It struck me while reading the paperwork that only today do I have the proper names for the tests they are going to be running. When I was pursuing a VBAC, I armed myself with as much medical information as I could. I felt like it was a fight. With this, I feel like the fight is already over. My baby will be put under. I have to start giving Ro the Bactrim. I have to rely on western medicine to take care of my little one.
It is hard to accept this. But, maybe I’m lame and overreacting. I have only been put under once and that as an adult to have my wisdom teeth removed. They asked me to count backwards from ten. I tried my best to stay awake, just to see if I could. I know I didn’t make it to one. I rarely went to the doctor as a child. I didn’t take many antibiotics. I was a healthy child. I don’t see doctors now until it is absolutely necessary. Like an, I can’t take it anymore, someone please take me to a doctor type of situation.
Ro has had troubles since birth, including her birth. She’s seen several different types of doctors – pediatrician, family doctor, naturopath, chiropractor, orthopedist, allergist, and urologist. She has severe eczema, food and environmental allergies. We fought over a year and a half to find out how to control that. I did everything natural that I could think of and find doing research before seeing the allergist. Now, it is better, sometimes. She takes two medicines for that, a steroid cream and a mild nerve medicine called Atarax. I only use those when she has flare ups. I treat it naturally continuously.
Now, she will go at three where I didn’t even fathom going until adulthood. I hope that we’ll get answers like we did when we saw the allergist. I just want to know what is happening. I need a diagnosis so I’ll know how to inform myself and help her heal.
I’m preparing her as best I can through diet and supplements. She eats traditional foods as we do. She takes a multi-vitamin, DHA and Omega 3, and L. Reuteri probiotic. Those supplements really help with her eczema too. I’ve been getting her outdoors as much as I can.
It is funny how she has changed since all of this. Since, her stay in the hospital, she hasn’t been very active. She wants to watch TV (we don’t have cable, but she has some DVDs) and not eat much. She is craving sweets (which are very limited in our home), and she has become a crier. Horribly whiny. Today in the grocery store she said, “Mommy, I can’t have this (holding a huge lollipop). Sweets makes you puke.” Somehow, she started equating her nausea and vomiting with too many sweets. That’s a fine though, but at other times she begs relentlessly for it.
I lack a lot of patience, so this has been hard. She said to me today, “Mommy, you’re talking nice to me.” My heart hurt when she said that because I know I’ve quarreled too much. I want to be her foundation. Her go-to mommy. I long to get this past us so we can move on. Break bad habits, and live healthily. I want to mother her – well.

Wrasslin' with the Devil - 2008
My husband titled a painting Wrasslin’ with the Devil (www.haywoodart.com) last year. It depicted a snake handling preacher with snake in hands looking oddly fearful and brave at the same time. I feel like I’m that preacher. Ro is going to have a procedure done to check her urinary tract and bladder and some problems she has been having. It’s gotten bad enough that she doesn’t drink enough to keep herself hydrated as she doesn’t want to go to the bathroom. This was enough to land her in the hospital for four days after she caught a stomach virus that everyone had had and recovered quickly from. The problem is that I am having to trust a doctor to treat her properly. She will be under anesthesia, and more than likely I won’t be in the room.
The devil in this situation is many things – me dealing with past, me dealing with fear, me second guessing. Ro’s birth was an unnecessary c-section that happened because I was too trusting that another woman doctor would treat me ethically. Since, it has been hard for me to trust a doctor even with minor things. So, in turn I second guess whether Ro needs the procedure or not. I think what if some of the behaviors are habits now, left over from a problem now healed, not indicative of a larger problem. I wonder if the procedure is necessary. I wonder all this despite the fact that the symptoms are still around and no better. It is the scar that is in my face everyday that is the problem, and I’m trying to protect my child from being affected by that scar any further.
The thought of a child as young as her being put under anesthesia frightens me. I hate the thought of her feeling that loss of control before you slip under. I’m thankful for it too because she won’t remember anything after – the procedure itself – which is the point. I’m still thinking I might request that I be in the room while it is done. It is in the hospital though, so I’m not sure that will fly.
Ro had her first antibiotics ever just last month. I’m adamant about taking pharmaceuticals only when clearly necessary. Then, I’m told by one doctor that he thinks the type of antibiotic used was overkill. She has had to see three different doctors. So, then, I think, overkill, who can I trust not pull an overkill on my baby. I want to say, “You’re not in the practice of playing let’s see how much of what I know I can actually use, but in the practice of assisting the human body in healing itself.” Why is that so hard?
We live off-grid and unfortunately (though improving) the access to quality healthcare is slim. To see most types of specialists one would have to travel at least three hours. I do believe we have a fairly local urologist with good intentions for my child in my head. Now, it’s time to make my heart believe it and make the best decision for my baby.
The vomiting happened again last night and I soon realized where the bravery in the preacher’s eyes came from. He felt called to handle snakes. I am called to protect and nurture my child. In order for him to handle the poisonous snake he had to let go and let God. In this instance, I have to look beyond my past experiences, and let go and let God.